References

History of Hospice

• Committee on approaching death: Addressing key end of life issues, institute of Medicine (2015). Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life 1st Edition. Washington, DC: National Academies Press.
• Connor, S.R., Pyenson, B., Fitch, K., Spence, C. & Iwasaki, K. (2007). Comparing hospice and nonhospice patient survival among patients who die within a three-year window. J Pain Symptom Manage,33(3),238-46.
• Hospice Care in America (2015). NHPCO’s Facts and Figures. April 14, 2016 retrieved from http://www.nhpco.org/sites/default/files/public/Statistics_Research/2015_Facts_Figures.pdf
• National Voluntary Consensus Standards for Palliative Care and End-of-Life Care. (2006). National Quality Forum. April 14, 2016 retrieved from http://www.qualityforum.org/Projects/Palliative_Care_and_End-of-Life_Care.aspx

Hospice today

• Committee on approaching death: Addressing key end of life issues, institute of Medicine (2015). Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life 1st Edition. Washington, DC: National Academies Press.
• Connor, S.R., Pyenson, B., Fitch, K., Spence, C. & Iwasaki, K. (2007). Comparing hospice and nonhospice patient survival among patients who die within a three-year window. J Pain Symptom Manage, 33(3),238-46.
• Hospice Care in America (2015).NHPCO’s Facts and Figures. April 14, 2016 retrieved from http://www.nhpco.org/sites/default/files/public/Statistics_Research/2015_Facts_Figures.pdf
• National Voluntary Consensus Standards for Palliative Care and End-of-Life Care. (2006). National Quality Forum. April 14, 2016 retrieved from http://www.qualityforum.org/Projects/Palliative_Care_and_End-of-Life_Care.aspx
• Hospice Quality Measures. CMS.gov https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/Hospice-Quality-Reporting/Current-Measures.html

Facts and Stats

• Centers for Medicare and Medicaid Services, Chronic Condition Warehouse. FY 2010 Hospice beneficiaries matched with FY 2010 Part D claims

• Centers for Medicare and Medicaid Services, Medicare Care Choices Model. Accessed 5/9/2016.
  https://innovation.cms.gov/initiatives/Medicare-care-Choices/

• Medicare Payment Advisory Commision (Medpac) 2016. REPORT TO THE CONGRESS Medicare Payment Policy. Accessed 5/9/2016
  http://192.168.1.1:8181/http://www.medpac.gov/documents/reports/march-2016-report-to-the-congress-medicare-payment-policy.pdf

• National Hospice and Palliative Care Organization (2014) NHPCO Facts and Figures on Hospice Care in America 2014 Edition. Accessed 5/9/2016 http://www.nhpco.org/sites/default/files/public/Statistics_Research/2014_Facts_Figures.pdf

Delivery of Hospice Care

• Global Directory of Palliative Care Services, Hospices and Organizations (2016). International Association for Hospice and Palliative Care. April 14, 2016 retrieved from http://hospicecare.com/global-directory-of-providers-organizations/
• Hospice Care in America (2015). NHPCO’s Facts and Figures. April 14, 2016 retrieved from http://www.nhpco.org/sites/default/files/public/Statistics_Research/2015_Facts_Figures.pdf
• Medicare Hospice Benefits (2016). U.S. Department of Health and Human Service. Centers for Medicare & Medicaid Services: Baltimore, MD. April 14, 2016 retrieved from https://www.medicare.gov/Pubs/pdf/02154.pdf.
• Medicare and Minimum Essential Coverage (MEC) U.S. Department of Health and Human Service. Centers for Medicare & Medicaid Services: Baltimore, MD. May 14, 2016 retrieved from https://www.cms.gov/medicare/eligibility-and-enrollment/origmedicarepartabeligenrol/index.html

Symptoms

• Chronic Conditions Warehouse (CCW) FY 2010 Hospice Beneficiaries matched with FY 2010 Part D. Accessed on April 22, 2013. Published in the Federal Register. Medicare Program; FY 2014 Hospice Wage Index and Payment Rate Update; Hospice Quality Reporting Requirements; and Updates on Payment Reform. 08/07/2013. https://www.federalregister.gov/articles/2013/08/07/2013-18838/medicare-program-fy-2014-hospice-wage-index-and-payment-rate-update-hospice-quality-reporting
• Arenella, C. (2014). Artificial Nutrition and Hydration at the End of Life: Beneficial or  Harmful? American Hospice Foundation. April 14, 2016 retrieved from http://americanhospice.org/caregiving/artificial-nutrition-and-hydration-at-the-end-of-life-beneficial-or-harmful/
• Department of Elder Affairs (DOEA) (2014), State of Florida. 2014 REPORT Hospice Demographic and Outcome Measures. Bureau of Planning & Evaluation, October 2014. Acccessed 5/17/16 http://elderaffairs.state.fl.us/doea/Evaluation/2014%20Hospice%20Report.pdf
• Kellehear, A. (2014). The inner life of the dying person. New York: Columbia University Press.
• Lawrence, M. (2015). The death view revolution: A guide to transpersonal experiences surrounding death. Guildford, UK: White Crow Books.
• World Health Organization (2013). Essential medicines in Palliative Care. Prepared by International Association for Hospice and Palliative Care (IAHPC). April 14, 2016 retrieved from http://www.who.int/selection_medicines/committees/expert/19/applications/PalliativeCare_8_A_R.pdf

Palliative Care

• Lynn, J., & Adamson, D. M. (2003). Living well at the end of life: Adapting health care to serious chronic illness in old age (Accession No. ADA416211). Santa Monica, CA: RAND Health.
• National Quality Forum. (2006). National voluntary consensus standards for palliative care and end-of-life care. Retrieved from http://www.qualityforum.org/Projects/ Palliative_Care_and_End-of-Life_Care.aspx

Psychosocial, spiritual issues and bereavement

• Guggenheim, J. & Guggenheim, (1995). Hello from heaven. New York: Bantam Books.
• Kubler-Ross, E. (1974). On death and dying. New York: McMillan.
• Lawrence, M. (2015). The death view revolution: A guide to transpersonal experiences surrounding death. Guildford, UK: White Crow Books.
• Nykamp, D. & Titak,J. (2010).Takotsubo Cardiomyopathy, or Broken-Heart Syndrome. Ann Pharmacother, 44(3), 590-593.

Concerns About Hastening Death

• Coleman, G. (2007). A Catholic guide to end-of-life’s crucial decisions: Advance directives. Daughters of Charity Health Systems. April 14, 2016 retrieved from http://www.rcda.org/Offices/pastoral_care_ministry/pdf/Advance_Directive_Guide.English_only.pdf
• Gopal, A. A. (2015). Physician-assisted suicide: Considering the evidence, existential distress, and an emerging role for psychiatry. Journal of the American Academy of Psychiatry and the Law, 43, 183–190.
• Pew Research Center (2013). Religious Groups’ Views on End-of-Life Issues. April 14, 2016 retrieved from http://www.pewforum.org/2013/11/21/religious-groups-views-on-end-of-life-issues/

Resources

• About Hospice or Palliative Care:
  American Hospice Foundation
  www.americanhospice.org 1-800-347-1413 (toll-free)
  

• Center to Advance Palliative Care
  www.getpalliativecare.org 1-212-201-2670
  

• Centers for Medicare & Medicaid Services
  www.medicare.gov 1-800-633-4227 (toll-free)
  

• Department of Veterans Affairs
  www.va.gov 1-877-222-8387 (toll-free)
  

• National Hospice and Palliative Care Organization
  www.nhpco.org 1-800-658-8898 (toll-free)
  

• Visiting Nurse Associations of America

• Global Directory of Palliative Care Services, Hospices and Organizations (2016). International Association for Hospice and Palliative Care. http://hospicecare.com/global-directory-of-providers-organizations/

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