Introduction
Working as a nurse case
manager at a nonprofit agency serving children with disabilities, you particularly
enjoy working with infants, toddlers, and children with Down syndrome. Although
this population has a shared base of health issues, each youngster is an individual
with unique needs, resources, and demands. Glancing at your appointment schedule
for today, you see that you have four appointments for children with Down syndrome
and briefly jot some notes for each meeting:
- Anna-Lise, a three-week
old with congenital heart disease, has been referred for a nutritional evaluation
and feeding consultation. Since you have not yet met with Anna-Lise and her
family, you wonder briefly if she is breastfeeding and whether her heart defect
will require surgical intervention. Checking Anna-Lises thin chart,
you spy a consultation note from the pediatric cardiologist along with a referral
to the early intervention program in her town.
- Carlos, an exuberant
32 month old, is getting ready to transition from the early intervention system
to the school system. His parents are concerned that theyre losing the
warm and wonderful therapists who have worked with their son for three years,
and want to know what they can do to continue his recent gains in speech and
language.
- Lanisha, a shy and quiet
five-year-old, has recently begun screaming and throwing things around the
room when family members dont comply with her demands. When she called
for the appointment, Lanishas mother expressed some concerns that Lanisha
wasnt listening very well. Is this a behavioral issue, you wonder, or
is Lanisha having health issues or perhaps a hearing loss?
- Justin, an eleven-year-old
who prefers computer games and DVDs to outdoor activities, is coming
in for a weight check. Although his parents have tried hard to control his
eating and encourage exercise, his weight gain is still out of control.