More than 10% of the individuals with Down syndrome have increased mobility of the cervical spine at the level of the first and second vertebrae, a condition known as atlantoaxial instability (AAI). Most are asymptomatic, but about 10% of those with AAI have symptoms of spinal cord compression (neck pain, torticollis, change in gait, loss of upper body strength, or changes in bowel/bladder functioning).

It’s important for nurses familiar with the teen to report any of these changes to the primary health care provider as soon as they occur, in order to prevent further complications. Nurses can also guide the adolescent into exercise and sports options that are safer for persons with AAI. For example, Special Olympics, Inc. bars athletes with AAI from competing in equestrian sports, diving, alpine skiing, snowboarding, and other sports that increase the risk for spinal cord compression.

Please visit the National Down Syndrome Society web site for in-depth infomation about Atlantoacial Instability.

Be prepared to answer the following question:

How is AAI normally diagnosed?

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